The European project ‘Genome of Europe (GoE)’, promoted by the Ministry of Science, Innovation and Universities (MICIU) and the researcher from the University of the Basque Country (UPV/EHU), aims to generate the most complete genetic database of the European population, incorporating 100,000 genomes representing all its citizens. This project is the largest in Europe to date and seeks to extend the benefits of genomics to national health systems by obtaining 500,000 reference genomes.
Pilar Nicolás, a researcher at the UPV/EHU, will coordinate the ethical-legal responses to the challenges of processing this genetic information, ensuring data protection and the autonomy of the participants. The initiative will be funded to the tune of 45 million euros, with the participation of 27 countries and more than 100 experts from 49 European research organizations.
The project, within the ‘European 1+ Million Genomes (1+MG)’ initiative, will facilitate the integration of genomic data into the European Health Data Space. The UPV/EHU will be in charge of the ethical-legal aspects, while other institutions such as the ISCIII and the CNAG will manage the samples and genetic sequencing.
Knowing the complete genome is crucial for the advancement of personalized medicine, as DNA offers keys to understanding how genetic diseases develop and are tackled.
Further information, HERE
